Living with someone who has Pancreatitis can be a challenge.
One that I wouldn’t wish on anyone.
In fact, because I was so sick at first and I was told by the only doctor who was able to diagnose my condition that I most likely did NOT have a future and since my wife wanted to have children and I felt so uncertain about my life and it seemed to me very selfish to make her go through it (I had watched my mom go through my father’s cancer and death), and to expect her to give up what she wanted in life – I released her.
She was NOT happy about it but I really thought I was actually doing her a very big favor. And, I heard she met someone, got married and had kids and hopefully was very happy.
Now, I didn’t say that is what someone else should do so don’t even think I am insinuating the same course of action if you are living with someone who has pancreatitis or you have pancreatitis yourself because I am not suggesting any such thing.
And I MEAN that.
Hell, I was probably wrong but given the exact same situation, that I faced then, I’d probably do exactly the same thing because there most likely was no future with me or at least that is what I was told. I now know that is NOT the case when one learns correct knowledge and applies that knowledge.
Anyway, back to the subject matter:
Living With Someone Who Has Pancreatitis: How To Do It
This subject matter is being discussed because I have seen “living with someone who has pancreatitis” used as keywords by people who were visiting my sites so there must be a few folks looking for answers. People who are obviously living with someone who has pancreatitis. Hopefully I can supply some decent answers that make sense. I will at least try to do so.
Living on Borrowed Time and Scared to Death
The first thing you need to understand when living with someone who has pancreatitis is, unless they are in denial, that suffering soul knows they could be living on borrowed time. And true none of us knows when we’ll die but some of us may not live as long as most. And it’s a tad different from cancer because the moment of truth’s realization could come tonight after their evening meal.
At any time, without much warning, they could suffer severe acute pancreatitis which results in necrotizing pancreatitis, organ failure and death. Pancreatitis is a condition that can turn ugly real fast.
I tried to put that out of my mind, but, it was and still is always there.
If you remember I have previously shared that I visited the ER on 7 different occasions. None of those visits had even close to satisfactory results or a hint of quality care. The most that EVER happened was ONE blood draw and a shot of demerol during one visit, which did NOTHING to decrease the pain. Now …
When I am sitting on the edge of the ER bed, leaning over, holding my guts in, sweating profusely, and panting like a damn dog from pain because there was no way I could lay down, hell I couldn’t even sit still, you would think any moron could determine there was a need for more tests.
So, if you are living with someone who has pancreatitis, receiving the same quality care I did (that was sarcastic), you need to understand that even if they portray an outside appearance of courage, they are probably scared to death. Even if they are receiving quality care they are most likely in fear thinking their time is short.
That fear doesn’t leave simply because the pain subsides.
Your spouse, child (this could be really scary for a child) or significant other, deep down most likely has a very large feeling of impending doom. Even if they receive quality care they are probably in fear of the next episode and their uncertain future.
If they suffer from complications it is going to be that much worse.
They May Not Want to Be a Burden
An important thing to get your head wrapped around when living with someone who has pancreatitis is they may not want to inconvenience you by asking you to cook them separate meals from the rest of the family and so they eat what the family eats which is something that will make their pancreas very upset, probably cause more damage, even end their life.
I can’t stress that enough so I am going to say it again …
Most people are much nicer than me. And so when asked if something is ok for dinner (or breakfast or lunch), especially if they love it, they will most likely say: “you bet”, eat it and suffer instead of telling you it isn’t a good thing for them.
That is WHY, if you love them, you need to know exactly what a pancreatitis victim should and should not eat. So study my pancreatitis diet plan and learn how to create a food diary because it means the difference between your loved one suffering, maybe dying a horrible death, or living to enjoy more happy memories with you.
Now I Am Gonna Be Blunt From Here On
Pay strict attention to my diet regimen.
I haven’t written this blog to make money or become famous.
I am simply sharing what has actually worked for me and allowed me to feel a lot better for approximately 10 years, then after learning more actually become pain-free and stay pain-free for the last 16 years except for ONE 3 – 4 week period in 2006 (it could have been 2005) when I was sicker than a dog because I poisoned myself with pork intestines. I did NOT read the label on the turkey sausage as well as I should have. The TURKEY sausage was in “pork casings” and I paid dearly. It took a long time to recover, heal and be well again. So learn from me (the good stuff) and from my mistakes and don’t make the same ones. Mistakes like overlooking or missing the ingredients on a label can be costly.
When Living With Someone Who Has Pancreatitis Listening To Others Can Be Dangerous
If you listen to most doctors, nutritionists, or people on the web (support groups) who have the condition and are not pain-free you are going to keep your loved one suffering, I guarantee it. You may even kill them.
I’m a bona fide walking-talking, pain-free chronic pancreatitis victim and I can vehemently tell you that a strict pancreatitis diet is absolutely imperative and if you vary from what I share with you on the subject of diet, you are basically shortening the life of your loved one, maybe outright killing them.
How is that for blunt.
Guess what it ain’t over yet cuz I ain’t through.
I couldn’t careless what doctors say in this regard.
I have read diet information for pancreatitis on medical sites that make me cringe!
If people who suffer from pancreatitis follow the food recommendations of most doctors and patients I have run across on the web it is no frickin’ wonder they are still sick and in pain and damn lucky they aren’t dead yet.
The NEXT point I want to make is:
If they aren’t hungry – don’t push food on them!
Loss of appetite is a BIG signal in pancreatitis.
What it basically means is that the patient’s pancreas is not in a good mood and doesn’t wish to be disturbed!
Listen to the signal!
If your loved one eats, they will most likely PAY – and – get this – that payment could be a horribly painful death!
IF they are NOT hungry just let them be, don’t make them feel bad because you spent hours cooking. It isn’t their fault they aren’t hungry or not feeling well, in fact, it may be yours because you make them feel they have to eat!
This use to happen to me ALL the time.
So you cooked a great meal.
So it took you hours.
I’m sorry, they are sorry, but get over it, let them be or you are gonna make them sicker than they already are.
For now I have run out of things to say so …
Feel free to ask questions. Leave me a comment and show me you are still alive!